PWS is a spectrum disorder and
symptoms vary in severity and occurrence among individuals. With the
benefit of an early diagnosis, access to growth hormone replacement
therapy, and a nurturing environment, those with PWS are
accomplishing more than ever. Nevertheless, even as many with PWS have
the intellectual capacity to live independently, the challenges of the
disorder are limiting, and the vast majority of individuals with PWS are
not able to live without constant supervision.
When first
learning of Clover's diagnosis, one of the hardest things for me to
grasp was the fact that she may never be able to live an independent
life. We all have hopes and dreams for our kids....mine included seeing
my children grow up, finish school, fall in love, have children, live
happy lives, etc. For a moment I felt like all of these hopes and
dreams were shattered. The hope is back and I will do everything I can
to raise awareness and help find a cure for PWS.
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